Well, that's... my goodness.
Might as well put a big old salt lick on the table for these kinds of conversations, because hEDS is just a pain in the ass to deal with.
Mobility depends a great deal on pain levels. The one person I know who has a confirmed diagnosis can sometimes walk around pretty normally, often needs a cane or braces, has a chair just in case, but sometimes pain flat out prevents wheelchair use unless she is pushed around. As far as have from her, the main common markers are chronic pain, flexible joints, frequent dislocations, and really soft skin. Find an MD willing to start a potentially expensive treatment plan based on that. Anecdote from a stranger, granted, but it is not easy for them to get help.
Complaints about finding care or having pictures taken of her walking around, OR having pictures of her hobbling on supports proves nothing about her condition, either for it against. Whether or not you are going to believe her is going to depend on your description of a 50% capacity fluid container.